Expert care helps Austin navigate the challenges of cystic fibrosis

Shortly after birth, Austin Huus was diagnosed with cystic fibrosis (CF), a rare and life-threatening disease characterized by thick, sticky mucus that clogs the lungs.

CF can also affect the gastrointestinal system and other organs. Decades ago, people with CF rarely lived past childhood. Today, at the Pediatric Cystic Fibrosis Center at M Health Fairview Masonic Children’s Hospital – one of the largest and most experienced CF treatment centers in the world – new treatments are offering hope to families facing this devastating disease. In honor of CF Awareness Month, we’re sharing Austin’s story.

Newborns across the country are tested for CF shortly after birth, but in Austin’s case, it was obvious right away that there was a problem. At birth his stomach was swollen, and his intestines were blocked. His parents were shocked to discover that Austin had CF.

“We didn’t even know what it was,” recalled Austin’s mom, Lisa. Austin was hospitalized with multiple lung infections as a baby, and he continued to struggle until his family came to M Health Fairview Masonic Children’s Hospital when Austin was about 2 years old.

Our nationally recognized CF treatment center is accredited by the Cystic Fibrosis Foundation. Every three months, Austin sees a team of doctors including lung, gastrointestinal, and ear, nose, and throat specialists; nurses and nurse practitioners; respiratory therapists; dietitians; social workers; and others. The teamwork is seamless. Every member of Austin’s team collaborates to help Austin and his family navigate the challenges of CF and its effect on his life.

“Here, our patients have access to any member of the team at any visit,” said Nurse Practitioner Carlye Tomczyk, APRN, CNP. Tomczyk is the associate director for clinical care at the Pediatric Cystic Fibrosis Center, and leads Austin’s care team.