Cystic fibrosis (CF) is a complex, life-threatening, inherited disease that affects your child’s lungs and gastrointestinal system. If your child has cystic fibrosis, he or she will find it difficult to breathe and may have recurring lung infections. CF can also affect other organs, such as the pancreas, where it prevents the release of digestive enzymes that enable your child’s body to absorb vital nutrients.
The majority of people with CF are diagnosed at birth through the use of screening test performed on all newborn babies across the country. Today, the median predicted survival age is close to 40, according to the Cystic Fibrosis Foundation.
Healthcare providers at the University of Minnesota Masonic Children’s Hospital are known throughout the world for their care of children with lung diseases, such as cystic fibrosis. The Minnesota Cystic Fibrosis Center is home to a multidisciplinary team that provides optimal care to allow for the highest quality of life possible.
Our team includes physicians, nurse practitioners, nurse coordinators, respiratory therapists, dietitians, social workers, and a genetic counselor. We work closely with pediatric physicians widely regarding as international experts in the areas of cystic fibrosis related diabetes, CF-related sinus disease, and gastrointestinal complications of cystic fibrosis.
This center is one of the world’s largest and most experienced, continually recognized among the best by the Cystic Fibrosis Foundation. Many of our physicians are also researchers, seeking new therapies and trying to understand and control potential complications of CF. We provide our patients access to a variety of clinical trials and encourage you to take advantage of them for your child. As the first center in the United States to apply preventive care successfully to CF patients, our cystic fibrosis patients have a longer life expectancy than any others in the United States.
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